clinic was pretty much the same as last time. Emily was 17.1 kilograms (yes, down from last time again), she has grown about 2 inches this year which is really great! Her WBC is 2200 and her ANC is 1200.
She is going off her daily IV med, Magnesium. If she handles it well we will be taking her central line out! This will be a very exciting day!
The doctor told me that even if her counts continue to be on the lower end as they are now, he will let her go to school in the Fall. It is all very confusing to me since he still says she is immune-compromised at the moment. Maybe the Cyclosporin has to be completely out of her system. All I know is that it seems like we can see the "light at the end of the tunnel!"
Emily is already having to adjust to a more "normal" way of life and she isn't so sure about it. She misses all the attention she got when she was so sick. This is all totally normal, and totally expected but we are hoping we can help her see how great it is to live life as a HEALTHY little girl. This has been her life for 7 years so I am sure it is going to take some time. Won't this be a great problem to have?
6 comments:
The fact that she could survive an episode of swine flu in the same house is amazing!
great news Jill! You all have been in our prayers. I've been meaning to call you to see how Thomas is doing? What a trouper he is and what an amazing mom you are! You are my hero girl!!! Can't wait to see everyone at the reunion! Love you and your family---give everyone our love!
YEAH for healthy Emily!! Tell her that sick or healthy she has already earned HERO status and that will never go away!!
Yeah for a Healthy Em!
I am glad that she is getting to have a taste of normal life again. I will pray that she can adjust quickly. Cute monkey!
Em will always be my special hero, I have learned so much from that little monkey, we are constantly praying that she will be completely healthy, its exciting to see her be able to do more things, she told me she could run through the sprinklers with her bathing suit on but she couldn't go swimming yet, she is so great to appreciate what she can do and be so excited about it. Love love love you
YAY for school and YAY for Emily! They will be lucky to be blessed by her presence and I bet you will REALLY miss her all day.
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