Day 4

If anyone is wondering, Emily now has the very cutest room in the whole hospital! Thanks to the Young women in our ward who helped cut out hearts and flowers and letters to show her how loved she is! Emily was overwhelmed by it all at first but by the end she was putting up hearts on the walls and having a great time! It was also fun for her to see Cambry and Mia who got to come along to help.

Emily stayed very busy today with visits from baseball players from the "Bees", she even got a signed baseball! They asked her what her favorite position was and she said "centers" (meaning, centers in school) they thought she met "Center field"...we played along! She also had time with Aunt Ali, Grandpa Whiting, and the child life specialist, Mike. The music therapist came in and played with lots of different musical instruments..Emily loved doing this. We also played with clay (thank you Shelby and Angee) for about 2 hours.

I am grateful for all of these wonderful diversions to help Emily forget that she is so itchy and not at home, going to school like everybody else. It is nice for her to have things to look forward to everyday.

Speaking of being itchy, last night she woke up at 12:00am going absolutely crazy. after an hour and 1/2 I looked at her and said, "We need to say a prayer." I have always felt Gods presence in my life, but this experience was so amazing! As soon as the prayer was over, I lay down beside her and she actually fell asleep! I feel so incredibly blessed! I was mad that I didn't think to do that the night before! The Lord truly cares about everyone and every thing that is happening in our lives!

Emily is so tough!!! Her blood pressure and heart rate were so high all day. The doctors decided that it is her body reacting to the pain it is in. Funny, even though she has sores in her mouth she keeps saying it doesn't hurt."I can't taste anything" is all she says. Being very cold has been the only other complaint. We think she has lived with pain for so many years that she just blocks it out and doesn't think about it. When they gave her Morphine, things got back to normal. She never ceases to amaze us all! All the nurses adore her; they are always so amazed with how she handles everything. That's our Emily, our red little rainbow! (This is what she wants me to call her instead of red tomato!)